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lochte_drive_08's Journal

Name:
Let's end Duchenne JEAH !
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Open
Posting Access:
All Members , Moderated



Welcome to the Official Livejournal community for the Ryan Lochte Fan Drive to End Duchenne 2008.

WHO ARE YOU?
We are fans of Ryan Lochte.

WHO IS HE?
Ryan Lochte is an Olympic gold medal swimmer and multiple world-record holder who specializes in
the backstroke and individual medley.


Almost as impressive as his swimming career is his work to promote awareness about Duchenne Muscular
Distrophy, meeting with senators on Capital Hill to push support for a bill that designates aid
to children with the disease. Ryan is now the national spokesperson for the Parent Project Muscular
Dystrophy
group, which promotes research and hosts fundraising events for kids suffering from
this condition.



Ryan currently holds the world record in the 200 meter backstroke at 1:53:94, which he set at the
2008 Olympic Games in Beijing, China. Our goal for this drive is to raise $15,394 on Ryan's behalf.

For up-to-the-minute information on Ryan, visit reezy_daily.

WHAT IS THIS DISEASE?
"Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting
approximately 1 in every 3,500 live male births (about 20,000 new cases each year). Because the Duchenne
gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.

"Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes
for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle
weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men
with Duchenne typically live into their late twenties.

"Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random
spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may
help slow its progression, there is currently no cure for Duchenne."

For more information and resources, go to the PPMD website.

WHAT IS THIS CHARITY?
Parent Project Muscular Dystrophy is the largest nonprofit organization in the U.S. that works to "improve
the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular
dystrophy (Duchenne) through research, advocacy, education, and compassion." The organization is
100% dependent on private funding and has been awarded a 4 Star Rating on
Charity Navigator for 4 consecutive years.


WHAT CAN I DO TO HELP?
Donate
Join or watch this community to stay updated on our progress and see how you can help promote us.
Join our Facebook group.


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